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Find here all the latest news on AFM-Telethon and rare diseases.

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Carte de voeux 2024 avec les 4 ambassadeurs du téléthon 2023
AFM-Telethon
02/01/2024

Happy new year!


The AFM-Téléthon sends you its best wishes for the New Year and hopes that 2024 will be full of scientific breakthroughs, small and large joys, and shared victories!

Cure through innovation booklet
AFM-Telethon
17/07/2023

The new Cure through Innovation booklet is out!

Cure through Innovation is a booklet that sums up the main actions and missions of the AFM-Téléthon association, as well as the key figures for 2022. The July 2023 edition has just been published!

Pr Judith Melki, présidente du conseil scientifique de l'afm-téléthon
AFM-Telethon
16/05/2023

A new president for the Scientific Advisory Board

On April 12, Prof. Judith Melki succeeded Odile Boespflug-Tanguy as president of the AFM-Telethon’s Scientific Advisory Board. Professor Emeritus of medical genetics, Judith Melki is at the origin of the discovery of the SMN gene, responsible for spinal muscular atrophy.

documents
AFM-Telethon
25/08/2021

Advances in research: two new documents are available

« Advances in Steinert’s disease » and « Advances in myotonic dystrophy type 2 » are two new documents, published by the French Muscular Dystrophy Association (AFM-Téléthon), which can be read and/or downloaded here.

genethon
AFM-Telethon
25/01/2021

Thirty years of Genethon: the saga in videos

The laboratory of AFM-Telethon celebrates its 30th anniversary: watch the video series recounting the saga of this one-of-a-kind laboratory, which put France at the forefront of genome exploration, and has supported gene therapy through thick and thin, bringing it to its first successes today. Let us have a look back at this ongoing medical revolution.