Un garçon en visite dans le laboratoire Généthon en compagnie d'une chercheuse

AFM-Telethon

Welcome to AFM-Telethon's website

Families and researchers are counting on you !

Latest news

Compteur Téléthon

Telethon 2025: 83,504,259 euros - Together, we are stronger!

The thirty hours of Téléthon 2025 come to an end with a total of 83,504,259 euros! A result worthy of Santa’s achievements, an exceptional patron thanks to her energy and her determination to “break the records”. This result embodies the trust and loyalty of donors standing alongside families, researchers and volunteers. Today, a new medicine driven by the Téléthon is changing and saving lives. This fight must continue, as 95% of rare diseases remain without treatments.

Constitué sous l’impulsion de l’AFM-Téléthon, MitoGether est un consortium d’associations françaises de personnes concernées par les maladies mitochondriales primaires.

Mitogether.com: the new reference website on genetic mitochondrial diseases

To celebrate World Mitochondrial Disease Week, the “MitoGether” consortium, uniting 12 patient and family associations, is launching Mitogether.com. This new portal aims to become the leading online resource for everyone affected by a genetic mitochondrial disease: patients, families, healthcare professionals, researchers, and pharmaceutical industry stakeholders.

Our fight to cure

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60 seconds to understand AFM-Telethon

The French Muscular Dystrophy Association (AFM-Téléthon) is a patient-led organisation driving research and support for people with rare genetic diseases. From groundbreaking therapies to daily care, discover how AFM-Téléthon turns innovation into hope.

Join the Telethon for french people abroad

You live abroad and want to be part of the great Telethon adventure? Join us!