Families and researchers are counting on you !

Terms and conditions

Published at

You are now on a website that is edited by the French Muscular Dystrophy Association (AFM-Téléthon), a 1901 law association of public utility. Its headquarters are based in Paris : AFM-Institut de Myologie, 47-83 boulevard de l’Hôpital, 75651 Paris Cedex 13.

This website is fully funded by AFM-Téléthon, thanks to Telethon donations.

It is dedicated to people suffering from a neuromuscular disease, to their families and anyone taking part into the Telethon.

This website...

presents scientific and medical information on each neuromuscular disease for which AFM-Téléthon is competent, the research progress and the ongoing trials;
gives practical answers to daily life matters for people who are concerned by one of these diseases;
explains the strategy and actions of AFM-Téléthon and reports about the use of the funds collected during the Telethon;
proposes different mobilization means for Telethon;
doesn’t host any kind of publicity.
Managing Editor of the website: Emmanuelle Guiraud, as the Director of Communication.

Deputy Director of Editorial: Marie-Pierre Verrier, in charge of Editorial communication.

Online Editorial Project Manager: Cécile Blanchard

Interactive Marketing Manager: Cécile Coldefy

Interactive Project Manager: Christophe Piton

Operational Web Project Manager: Pascal Cargouet

All the medical and scientific information displayed on this website has been selected by a team of specialized editors, based on reliable scientific publications. They are validated by expert health professionals.

AFM-Téléthon owns all copyrights over the whole of its website, including images, text, logos, photographs and downloadable documents.

Your rights

AFM-Téléthon will store all information that you provide, for example when requesting quotes. These details will be used for the sole purpose of helping you access these services. You have the right to access and be sent these details and to correct or delete them, in line with articles 35, 36 and 3 of the law of 6 January 1978; you can exercise these rights by contacting AFM-Téléthon. For more information, please contact the CNIL for information on the protection of personal data, latest news, practical advice, official regulations, health and the internet etc.

Copyright over text and images

Users of the AFM-Téléthon website agree to respect the intellectual property rights over the content offered on the site and will not:

copy, summarize, modify, alter or redistribute, without prior permission from AFM-Téléthon, any article, title, application, software, logo, brand name, information, illustration or photograph other than for strictly private purposes; this includes copying for professional purposes and mass distribution;
reproduce all or part of the site on another website or internal company network;

Photo credits :

RAPHO/Jacques Grison/Jean-Erick Pasquier (photos noir et blanc)
AFM / Luc Morvan
AFM / Philippe Prouff
AFM / ML. Messana
AFM / Eric Musenger
AFM / Nathalie Tirot
AFM / Roland Bourguet
AFM / Jean-Pierre Pouteau
AFM / Adeline Bommart
AFM / Bruno Thomas
AFM / Laurent Audinet
AFM / C. Maout
AFM / Jean-Marie Aragon
AFM / Pierre Guibert
Jean Pierre Bolle
Agence Lubrik/Christophe Hargoues

Vidéos credits
Gildas Debaussart
Oussama Redouan
AFM Productions

Music credits

Téléthon’s original song was composed by Mr Marc Goldfeder (

Web design and hosting

Graphical and technical design : Klee Group
Content management system : Drupal 9
Hosting : Claranet
Contact address :