About us
AFM-Telethon is a patients' organisation fighting neuromuscular diseases, rare genetic disorders that kill muscle after muscle. Its primary goal : to conquer the disease.
![AFM-Telethon's history : Yolaine de Kepper, first Chair of AFM-Telethon](/sites/default/files/styles/landscape/public/media/images/EN_vignette_AFM-telethon-history.jpg.webp?itok=yNiKqssO)
Our history
The French Muscular Dystrophy Association (AFM-Telethon) is an association of activists, patients and parents of patients, affected by rare, progressive and significantly disabling genetic diseases, known as genetic neuromuscular diseases. It was created out of a conviction and a desire, to cure diseases that were long considered to be incurable. AFM-Telethon is also the Telethon, a fundraising event which brought rare diseases out of scientific and medical obscurity and triggered a three-fold revolution: genetic, social and medical.
![AFM-Telethon's missions : Cure, Care, Communicate](/sites/default/files/styles/landscape/public/media/images/EN_vignette_AFM-Telethon_missions.jpg.webp?itok=gC9kjUVV)
Our missions
Innovation in scientifical, medical, social and technological fields, AFM-Telethon is a pioneer in the research and support to improve patients’ lives. Three missions are at the heart of its action: Cure, Care, Communicate.
![AFM-Telethon's fights for patients with a neuromuscular disease, rare disease and people with a disability](/sites/default/files/styles/landscape/public/media/images/EN_vignette_AFM-Telethon-fights.jpg.webp?itok=o8mf47cu)
Our fights
AFM-Telethon has long struggled to defend the rights of patients, of people living with disabilities, and to obtain recognition for rare diseases. As a driver of research and innovation, it defends an ambitious national policy.
![AFM-Telethon's organization : Laurent Tiennot-Herment, Chair of AFM-Telethon](/sites/default/files/styles/landscape/public/media/images/EN_vignette_AFM-Telethon-organization.jpg.webp?itok=3V2dXbZl)
Our organization
Committed to scientific research as well as to the support of patients and their families, AFM-Telethon acts independently, guided only by the urgency of the progressive disease, for the benefit of patients.
![vignette nos comptes couverture du rapport annuel 2023](/sites/default/files/styles/landscape/public/media/images/Noscomptes-Page_0.jpg.webp?itok=H7fKhhHX)
Our accounts
Transparent and meticulous management: in 2023, AFM-Telethon committed €93.5 M to its social missions, in addition to €6.9 M in advances and investment for the Cure mission.