28/02/2022
France revives positive European Momentum against Rare Diseases
It is a positive commitment, but France must set an example by perpetuating and amplifying a truly ambitious national policy.
Find here all the latest news on AFM-Telethon and rare diseases.
It is a positive commitment, but France must set an example by perpetuating and amplifying a truly ambitious national policy.
On 16 December 2021, the UN adopted the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.” A huge recognition for families with rare diseases.