28/02/2022
France revives positive European Momentum against Rare Diseases
It is a positive commitment, but France must set an example by perpetuating and amplifying a truly ambitious national policy.
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05/01/2022
First-ever United Nations resolution to increase visibility for persons living with a rare disease and their families
On 16 December 2021, the UN adopted the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.” A huge recognition for families with rare diseases.