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Find here all the latest news on AFM-Telethon and rare diseases.

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Event
16/04/2024

Upcoming opening of the 8th International Myology Congress

From April 22 to 25, the AFM-Telethon is organizing a major scientific congress at the Palais des Congrès in Paris. More than 1,100 experts in muscle and its diseases from all over the world will gather to review the latest advances in our knowledge of muscle (myogenesis, regeneration, fibrosis, aging, exercise, etc.) and our understanding of neuromuscular diseases, as well as the latest therapeutic innovations, particularly in gene therapy. 

Plateau du téléthon 2023 avec 100 chercheurs
Telethon
19/12/2023

Telethon 2023 : €80,671,222: Thanks to you! 

The Telethon 2023 ended on a high of €80,671,222, which shows the confidence and exceptional mobilization of donors and volunteers for this year's event, rich in victories against disease and promises for all those waiting for the diagnosis and treatment that will change their lives. We must not give up. 

Logo myology 2024 Paris
Event
14/11/2023

Myology 2024 in Paris: registrations and call for abstract are open

The 8th edition of international congress dedicated to neuromuscular science, MYOLOGY 2024, will take place in Paris from 22 to 25 April 2024. Registration and call for abstract are now open : don't miss an opportunity to showcase your latest study to an international community of scientists and healthcare professionals. The deadline for abstract submission has been extended until November 30, 2023 - 11:59 pm.

Une personne dans la foule
Event
02/06/2023

1st European Myasthenia Gravis Day: All united to raise awareness of this disease

Characterized by fatigue and muscle weakness that fluctuate over time, autoimmune myasthenia gravis is the subject of the very first European Myasthenia Gravis Day, on 2 June 2023. The aim is to give as many people as possible an understanding of the impact of this unpredictable and often invisible disease, and to standardize the way it is treated across Europe. 

Jules and his parents walking for the Telethon
Telethon
03/04/2023

90,839,067 euros for the Telethon 2022: we have not given up. Thank you!

Thank you to everyone: donors, volunteers mobilized throughout France and abroad, families, partners, personalities! Thanks to your mobilization on December 2 and 3, the Telethon 2022 raised 90,839,067 euros! This tremendous result - the best since 2016 - shows how much the French people support the families’ fight against rare diseases.

Haut du corps : le muscle
Event
14/02/2023

Muscles, a major public health issue

Because muscles are a major public health issue, AFM-Telethon and the Institute of Myology, an international center of expertise on muscles and their diseases, are carrying out a project for a Myology Foundation. In addition, to raise awareness on myology among the public, they are launching two events dedicated to this public health issue in June 2023: the Muscle Conferences and Muscle Week. 

voeux-vignetteok
Event
05/01/2023

Best wishes for 2023 !

The AFM-Telethon sends you its best wishes for the New Year and wishes you a year 2023 full of color and joy!

Téléthon 2022 merci
Telethon
09/12/2022

Téléthon 2022 : € 78 051 091. Thank you very much! 

The Téléthon 30-hour-long broadcast ended with donations totaling 78 051 091 euros. From Guebwiller to Cassis, Dijon, Lorient and Cap-Ferret, millions of people came together again for the Téléthon, this unique celebration with its thousands of events. A vital support for the families and researchers, “these saving lives maniacs” as Kev Adams called them. But while researchers’ victories multiply, all week-end long patients and their families reminded everyone of the urgency of finding new treatments. 

TFE 2022
Telethon
04/11/2022

December 2 and 3: ready for the Telethon!

You live abroad and want to play a part in the Telethon? Join the Telethon for French people abroad and help us break records of mobilization around the world! 

Myology2022-ptogramme
Event
25/08/2022

Myology 2022 and MitoNice 2022: the program is available!

From September 12 to 17th, AFM-Telethon will hold two successive scientific congresses gathering close to 1000 international experts on myology and mitochondrial medicine at the Nice Acropolis Convention Centre. Registrations are open!

Soprano-Parrain-2021
Telethon
28/04/2022

Telethon 2021: What an unbelievable result! 

Through the collective mobilization of donors, volunteers, families, and partners, all united in solidarity to fight against rare diseases, the final result of the 2021 Telethon amounts to €85.933.166. Thank you!

AFM-Telethon-Telethon-TV-program: Since 1987, the Telethon is a TV marathon lasting around thirty hours and broadcast on the France Télévisions TV channels.
Telethon
06/12/2021

€ 73 622 019 thank you! The fight can continue!

The 2021 Telethon ended with donations totaling 73 622 019 euros. An amount reflecting the generosity of the general public, the energy felt during thousands of Telethon events throughout France and abroad, and the strength of families’ fight and researchers’ determination. This unique combination is the cause for a true revolution in medicine that saves lives and opens up new prospects for treatment.

annonce des résultats téléthon 2020
Telethon
26/04/2021

77 298 024 € raised for the 2020 Téléthon!

Last December 4th and 5th, the 2020 Telethon took place in a difficult context due to the COVID19 crisis with donations totalling nearly 58.3 million euros by the end of the TV broadcast. A few months later, we are extremely proud to share the exceptional final result of our 2020 fundraising campaign: 77 298 024 euros. Thank you so much!