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AFM-Telethon puts the power of patients at the core of its international activities, with the aim of strengthening the place of French neuromuscular patients in Europe and in the world. 

Innovative therapies for rare diseases are being developed internationally. Base on this observation, AFM-Telethon encourages worldwide collaboration between the most competent teams.

Find here all the latest news on AFM-Telethon and rare diseases.

Find here AFM-Telethon's latest news, publications and press releases.

AFM-Telethon takes action in various fields, from research, development and bioproduction of innovative therapies for rare diseases to care for patients and their relatives. The association also advocates to defend patients’ rights and takes part in international activities. Discover our actions to fight disease.

Take part in the Telethon to give AFM-Telethon the means to conquer the disease. Discover how to participate and join us !

Discover the different ways to give to support AFM-Telethon and families' fight against rare diseases.

The Telethon, it’s a TV program combined with an exceptional momentum that gathers thousands of participants throughout France and overseas departments, that gives AFM-Telethon the means to continue its fight against disease.

AFM-Telethon is a patients' organisation fighting neuromuscular diseases, rare genetic disorders that kill muscle after muscle. Its primary goal : to conquer the disease.

Myobase is a document portal dedicated to neuromuscular diseases and motor disabilities, published by the documentation department at the French Muscular Dystrophy Association. It gives access to over 60,000 documents. 

Thanks to your donations, research is moving forwards, the first treatments have arrived and care and support for people affected by rare diseases has improved. Your donations drive the victories of AFM-Telethon!  

The French Muscular Dystrophy Association (AFM-Telethon) is an association of activists, patients and parents of patients, affected by rare, progressive and significantly disabling genetic diseases, known as genetic neuromuscular diseases. It was created out of a conviction and a desire, to cure diseases that were long considered to be incurable. AFM-Telethon is also the Telethon, a fundraising event which brought rare diseases out of scientific and medical obscurity and triggered a three-fold revolution: genetic, social and medical.  

From genome maps to the discovery of the genes responsible for diseases, an entire sector of world medicine has made a spectacular leap forward, thanks to the determination of AFM-Telethon families, and the momentum of the Telethon.  

The 10th International Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day takes place on September 30. Organized by the LGMD Awareness Foundation, the day's mission is to draw attention to this group of rare neuromuscular diseases and their impact on the lives of affected children and adults in all regions of the world. 

Alongside the hosts of France Televisions and surrounded by numerous artists, Mika will use all his talent, sensitivity and energy to support families in their fight against rare diseases. Discover his message !