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Constitué sous l’impulsion de l’AFM-Téléthon, MitoGether est un consortium d’associations françaises de personnes concernées par les maladies mitochondriales primaires.
Actualité
16/09/2025

Mitogether.com: the new reference website on genetic mitochondrial diseases

To celebrate World Mitochondrial Disease Week, the “MitoGether” consortium, uniting 12 patient and family associations, is launching Mitogether.com. This new portal aims to become the leading online resource for everyone affected by a genetic mitochondrial disease: patients, families, healthcare professionals, researchers, and pharmaceutical industry stakeholders.

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AFM-Telethon-progress-in-research-booklets
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03/09/2025

Advances in research 

Documents to discover everything about the latest progress in research for a given disease or group of diseases. See the publications in English. 

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AFM-Telethon supports research throug annual calls for proposals
Appel d'offre
25/08/2025

Calls for proposals

Through its annual calls for proposals, each year AFM-Telethon supports new research projects in France and abroad, particularly for young researchers. After assessment by its Scientific advisory board, the Association finances the most relevant or most innovative initiatives in the development of therapeutic concepts and the understanding of the causes of rare and neuromuscular diseases. Discover its calls for proposals and financing opportunities. 

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AFM-Telethon's organization : Laurent Tiennot-Herment, Chair of AFM-Telethon
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08/07/2025

Our organization 

Committed to scientific research as well as to the support of patients and their families, AFM-Telethon acts independently, guided only by the urgency of the progressive disease, for the benefit of patients.  

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Sacha, ambassadeur du Téléthon 2024, en compagnie de ses parents
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08/07/2025

Our accounts 

Transparent and meticulous management: in 2024, AFM-Telethon committed €97.8 M to its social missions, in addition to €14 M in advances and investment for the Cure mission.  

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Le plateau de l'émission télé du Téléthon
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08/07/2025

The TV program

Since 1987, the Telethon is a nearly thirty hours TV program broadcasted on the France Télévisions' channels. Discover all the ingrediants of the TV show.

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Des bénévoles lors d'une animation Téléthon
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08/07/2025

People coming together

At each Telethon, thousands of volunteers and partners join forces to organize fundraising initiatives all over France and abroad. This participation is unique by its sheer scale.

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AFM-Telethon-become-partner: your company can get involved in various ways.
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08/07/2025

Become a partner 

Participation in the Telethon or support for our therapeutic and social innovation projects, your company can get involved in various ways. Find out how to become a partner/sponsor of AFM-Telethon.

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AFM-Telethon's actions to support patients and their relatives
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08/07/2025

Our actions to support patients 

AFM-Telethon is battling on all fronts, from access to diagnosis and appropriate treatment to close support, giving priority to the search for innovative solutions and a response to the needs of patients. 

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AFM-Telethon's commitment to innovation to speed up the development of innovative biotherapies
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08/07/2025

Our commitment to innovation

Encouraging innovation, creating pathways between academic research and private research, supporting those involved in developing the drug: the AFM-Telethon is investing to speed up the arrival of innovative biotherapies. 

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AFM-Telethon's support for research on rare genetic diseases
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08/07/2025

Our support for research

Treatments and therapeutic innovation are born out of the knowledge of genes and the understanding of the mechanisms causing disease. Beyond its three pioneering laboratories combined within the Biotherapies Institute for rare diseases, AFM-Telethon has been developing collaborations for many years with scientists from all over the world.

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AFM-Telethon's laboratories
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08/07/2025

Our labs

To accelerate the development of innovative treatments for rare diseases, the AFM-Telethon has created its own laboratories. Devoted to gene therapy of rare diseases (Genethon), to stem cells (I-Stem) and to myology (Institute of myology), they are now international leaders in their field. Located within the Institute for rare disease biotherapies, the Association’s three laboratories play a major role in the medical revolution.   

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Ivy, ambassadrice du Téléthon 2023, embrassée avec amour par ses parents
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07/07/2025

Our missions

Innovation in scientifical, medical, social and technological fields, AFM-Telethon is a pioneer in the research and support to improve patients’ lives. Three missions are at the heart of its action: Cure, Care, Communicate.

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